Learning to Live with Fragile X

 

 

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By Cindi Rogers
Paperback, 292 pages
Published May 16th 2014 by Createspace
ISBN 1497373409 ISBN13: 9781497373402

 

 

 

 

 

Becoming Mrs. Rogers is the true and heart-felt story of one couple’s journey into acceptance following a devastating genetic diagnosis for both of their sons. Their story, its highs and lows entwined with its wisdom and compassion, has been a beacon of hope for thousands of families struggling with fragile X and other autism spectrum disorders.

Fragile X is a common and inherited cause of learning difficulties, affecting a child’s entire world, including social and behavioral problems as well as cognition and speech. Rogers not only tells her story, but also gives advice for new parents, sharing facts about…

* the physical and behavioral characteristics of Fragile X
* the effects of Fragile X on learning, functioning and daily activities
* medication and therapy
* how fragile X affects the family.

Cindi Rogers and her husband, Chris, share the perspectives and tools they embraced in order to help their boys be as happy and independent as they can possibly be. It is a story of challenges, tears, joy and hope.

**A portion of the proceeds of this book are donated to the Rogers Neighborhood FX Family Fund which in turn offers scholarships to the NFXF International bi-yearly FX Conferences.**

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Getting to know Cindi Rogers and her Family
Cindi is the mother of two sons, ages 23 and 25, who are affected with fragile X syndrome and autism. Since receiving this diagnosis, Cindi has become a leader and symbol of hope within the fragile X community.  Her positive attitude, creativity and defining can-do attitude has inspired families and professionals worldwide. Cindi and her family have travelled to conferences around the world to present her innovative strategies, helping families not only to live with fragile X, but to also thrive. It has become her personal mission to share techniques to help families generate ideas that they can implement in their own world, while helping their children with fragile X syndrome to live happier, more independent lives. Today, Cindi serves on the board of directors for Developmental FX in Denver, a non-profit that helps families just like hers learn to thrive in the face of fragile X syndrome. She lives and works with her husband and two sons in Littleton, Colorado, and together they love travelling the U.S. in their RV named Rocket.
 
Connect with Cindi:                                                                   
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Facebook- 
Twitter-  @MrsRogers2014
Rogers Neighborhood FX Family Fund–http://www.rogersneighborhoodfxfamilyfund.com
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Our Boys
Our boys are like many affected by fragile X syndrome; they don’t like to have their picture taken!  This photo turned out awesome, only after 52 “trials”, the addition of sun glasses, and offering a sitting position (with a snack in the wings).  Things are not always as they appear.  We were so very proud to have this memory documented.
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